Wednesday Wanderings When You Need The Loo

If like me you have a bladder that’s about as strong as a very weak thing, going for a long walk can be a frustrating experience. I love walking, and I’m currently trying to build up my walking ability so that in a couple of years’ time I’ll be able to walk around the coastline of the UK. But it’s hard when I need to pee a minimum of once an hour.  Read more

Why Do We Bother?

I am so tired. So tired of friends asking how I am, and then if I tell them, saying “Well maybe you should go to the doctor.”

Tired of going to the doctor and not being believed, having my symptoms dismissed, because… why? I’m a woman? I don’t know why, but all I can say for sure is that I have never been to the doctor about something which has turned out to be nothing, and yet that’s what they expect to happen every. fucking. time.  Read more

This Week, Not Much To Report

Without wanting to sound too morose about it, this week was shit and I have nothing much to report. I was very ill and I spent most of it either in bed or in the bath. However, in the interests of making sure you all know I’m still alive, and of keeping people updated so they don’t inundate me with messages asking how I am, I will write a short post anyway.

On Thursday I spent a record 15 hours in the bath, 12 of them in one straight run. About once every two hours I’d get out, drain the water and run a new one. I’ve now used up my annual allowance of water, I think.

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How To Act When Someone You Know Is Seriously Ill

As we all know, I’ve been stumbling through life a bit pathetically over the past few months, after my internal organs started trying to kill me. They probably won’t succeed, because they haven’t succeeded any other time they’ve tried and because I’m getting treatment, but in the meantime I’m pretty much housebound, except for occasional trips to the supermarket at the end of the road on days when I have enough energy to walk there.

Yesterday was one of those days (yay!) and I went to buy some washing up sponges and some pears. Now that I can sometimes eat successfully, I am experimenting with different foods. So far most non-citrus fruits seem to be OK most of the time (double yay).

On my way there I bumped into a friend whom I haven’t seen since just before I got ill. We had a brief conversation, then he went on his way, I did my shopping and came home. On the way back I realised that his reaction has been a textbook example of the best way to act when someone you know is seriously ill. I know it’s a subject that’s understandably difficult for a lot of people – what should I say? when should I say it? is it OK to ask stuff? – so I thought I’d use him as an example and write a post about it.

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